My Sickle Cell Research Xplained

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My Sickle Cell Research Xplained

Read Maree’s real story, as she shares her story to help you understand more about living with Type 2 Diabetes and managing the Hypos that can come along with it.

Easy to understand information about sickle cell disease research. Created by doctors and people living with sickle cell disease. Scroll to see the latest content we have created!

My Sickle Cell Research Xplained Stories

Stories based on people with sickle cell disease, their experiences and advice to others on how sickle cell research has played a role in their lives.
Sickle Cell Clinical Trial Experience

Blogs and Podcasts on Sickle Cell Disease Research

Check out the latest blogs and podcasts for helpful topics on sickle cell disease research.

To see all of our blogs, click here. To see all of our podcasts, click here.

Blog 8 – Basics Behind Gene Therapy

Episode 2 – Progress in SCD Research and Potential New Treatments

Join Our Facebook Community

We've created a private Facebook community to discuss sickle cell disease research. Join the community to stay up to date on content added to this website about sickle cell disease research!

Meet the Experts

Meet the experts who helped create the My Sickle Cell Research Xplained content. We’ve got a pretty great panel. Check out their bios to learn more!
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Amber Yates, MD*

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Shirley Miller, MA*

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Nirmish Shah, MD

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Mary Brown*

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Meet the Advocates

Meet the advocates who helped create the My Sickle Cell Research Xplained content. Check out their bios to learn more!

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Teonna Woolford

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Dominique Goodson

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Shamonica Wiggins

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Medicine X Story

Working as a medical doctor, I realized that far too many people may be confused about their diagnoses, their conditions, and their treatments. There can be a disconnect between the language that health care providers use, and what many individuals understand. This can make you feel anxious at what is often a very difficult time in your life.

We believe there is a better way. We believe all people, regardless of age, gender, culture or condition, should have access to medical information they can understand! Everyone should feel informed and empowered, in order to engage with their health care providers and be involved in making medical decisions.

This is why Medicine X was created.

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Dr Kim Chilman-Blair
Founder, Medicine X

About My Sickle Cell Research Xplained

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Teonna Woolford

Teonna has sickle cell disease (HbSS), and she has gone through many complications from the disease. In 2011, she underwent a bone marrow transplant which she rejected. Although the experience was devastating and extremely difficult, she credits it as what moved her into advocacy and founding SC RED, the Sickle Cell Reproductive Health Education Directive, an organization that advocates for high-quality reproductive health care for individuals living with all types of sickle cell disease.

Dominique Goodson

Dominique has sickle cell disease and is a professional patient advocate. She is a Senior Project Manager at the Sickle Cell Community Consortium and serves as the dean of Warrior University. Dominique has served as a lead advisor for the Young Adult Sickle Cell Alliance, and she works with many other Sickle Cell community-based organizations. She is the president of the SCDForum, an online platform that provides information for fighters and their caregivers to equip, empower, and encourage the community.

Shamonica Wiggins

Shamonica has sickle cell disease (HbBSS) and is a recognized authority on sickle cell self-care. She is the creator and former CEO of the non-profit organization #BoldLipsForSickleCell. In 2018, she was awarded the National Sickle Cell Advocate of the Year by Sickle Cell 101. She is the Social Media Manager at the Sickle Cell Community Consortium and is a passionate patient advocate with a focus on representing the patient voice where it matters most. She is also a new mother.
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