Blog 1: Knowing What Useful Resources Are Out There – My Sickle Cell Research Xplained

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Blog 1: Knowing What Useful Resources Are Out There

Welcome to the first blog on the My Sickle Cell Research Xplained Website! Are you confused about what’s out there on the Internet, and don’t know where to start when searching for sickle cell disease research information? Well, look no further – we’re here to help!

Whether you’re seeking more knowledge about sickle cell disease research or clinical trials, there are many resources on the Internet available at your fingertips.

Also, stay tuned to our website for more content Xplaining sickle cell research in easy-to-understand everyday language! You’ll get to hear what a patient advocate has to say about sickle cell research and more. For now, join others like yourself to chat about sickle cell research in the My Sickle Cell Research Xplained Facebook group!

Knowledge is power

We’ve picked some websites that may help you learn about sickle cell disease research. We hope this helps you on your journey to empower yourself with more knowledge about sickle cell research for you and/or your loved one!

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Say what? A recap of new words:

  1. Research: an investigation or study to discover (new) information or facts, and reach a (new) understanding or conclusion.
  2. Clinical research: a type of research in which people are studied to understand health and disease.
  3. Clinical trial: a type of research study that tests how well new medical approaches work in people. These studies test new methods of screening, prevention, diagnosis, or treatment of a disease.

Till next time…

If you still haven’t found what you’re looking for from these top 10 sites, here are a few others consider when looking for sickle cell research and trial information:

The Sickle Cell Information Center
National Organization for Rare Disorders
Sickle Cell Community Consortium
Medline Plus
Clinical trials.gov

Be sure to visit us next week for our next blog about why people participate in sickle cell trials and what the clinical trial process is all about!

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