Blog 2: Snapshot of Current Ongoing Sickle Cell Disease Research – My Sickle Cell Research Xplained

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Blog 2: Snapshot of Current Ongoing Sickle Cell Disease Research

In our last blog, we talked about the many different resources out there for learning about sickle cell disease research. Now, we’re breaking down what research really means in helpful everyday language and giving you a snapshot look at the kinds of things currently being researched for sickle cell disease!

So what is research?

In general, the word “research” means an investigation or study to discover new information or facts, and reach a new understanding or conclusion. There are many types of research, but the one we’ll focus on is clinical research. Clinical research means a type of research focused on people. The goal of the research can be to find out facts and make potential conclusions about:

  • Preventing a disease
  • Detecting a disease
  • Diagnosing a disease
  • Treating a disease

Clinical research to understand health and disease in people is probably one you’ve heard a lot about. This type of research is done through a clinical trial, which is a type of research study that tests how new medical approaches work in people. These studies test new methods of screening, prevention, diagnosis, or treatment of a disease.

So what are scientists and doctors actually studying currently for sickle cell disease?

You might be surprised to learn that there are over 100 sickle cell clinical trials in the United States currently! Pretty impressive, huh?

Visit www.clinicaltrials.gov to see what is being researched for sickle cell disease. Look out for an upcoming guide on how to navigate www.clinicaltrials.gov.

Say what? A recap of new words:

  1. Research: an investigation or study to discover new information or facts, and reach a new understanding or conclusion.
  2. Clinical research: a type of research in which people are studied to understand health and disease.
  3. Clinical trial: A type of research study that tests how new medical approaches work in people. These studies test new methods of screening, prevention, diagnosis, or treatment of a disease.
  4. Study drug:
    • may not have yet been proven to be safe and/or to work or
    • has been proven to be safe and works for a specific disease and in a specific patient population, but not yet for other diseases and other patient populations or
    • has potentially new effects that are yet to be proven

Till next time…

Don’t forget to visit the My Sickle Cell Research Xplained Facebook Group to talk about all the research that’s going on!

Remember, if you’re interested in seeing more sickle cell trials currently going on, click here. You can also read more about accomplishments in sickle cell research.

Stay tuned for our next blog where we do a sneak peek at the top questions patients have about clinical research and trials.

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