Patient advocate Mary Brown sat down and chatted with us about the top questions people with sickle cell disease and their caregivers have about clinical research. Can you guess what the top questions are? You might be surprised!
Sickle cell disease patient advocate, Mary Brown, says these are the top 10 burning questions people with sickle cell disease and their families have about research and clinical trials.
Listen to sickle cell disease patient advocate, Mary Brown, discuss some things other people with sickle cell disease and their families may be wondering about.
Sickle cell disease patient advocate, Mary Brown, answers some of these top questions that people with sickle cell disease are asking about!
In our last blog, we talked about the many different resources out there for learning about sickle cell disease research. Now, we’re breaking down what research really means in helpful everyday language and giving you a snapshot look at the kinds of things currently being researched for sickle cell disease!
Welcome to the first blog on the My Sickle Cell Research Xplained website! Are you confused about what’s out there on the internet, and don’t know where to start when searching for sickle cell disease research information? Well, look no further—we’re here to help!
Whether you’re seeking more knowledge about sickle cell disease research or clinical trials, there are many resources on the internet available at your fingertips.
Also, stay tuned to our website for more content Xplaining sickle cell research in easy-to-understand everyday language! You’ll get to hear what a patient advocate has to say about sickle cell research and more. For now, join others like yourself to chat about sickle cell research in the My Sickle Cell Research Xplained Facebook group!