Blog 5: Finding Trials for Sickle Cell Disease

In blog 2, we talked about going to www.clinicaltrials.gov to see what kind of research is going on for sickle cell disease.

Now, we want to make sure you know how to actually get involved in sickle cell disease research, if you’re interested!

So in this blog, we’ve put together a how-to guide on how to find clinical trials for you. We know some people may find the first step to actually finding a trial challenging!

The good news is, there are a few online databases that list every trial that’s recruiting in the United States. Sort of like a “Google search” but just for clinical trials.

The bad news? Well, they can be confusing to use! That’s what we’re here for. Check out our how-to guide on how to make the most of these search engines. And be sure to ask your doctor about any sickle cell disease trials in your area too.

Blog 3: Top Questions

Questions from people with sickle cell disease and their families about research and clinical trials

Welcome back! In today’s blog, we’re going to take a sneak peek into the types of questions sickle cell disease patient advocate, Mary Brown, says are the top 10 burning questions people with sickle cell disease and their families have about research and clinical trials.