Blog 5: Finding Trials for Sickle Cell Disease

In blog 2, we talked about going to to see what kind of research is going on for sickle cell disease.

Now, we want to make sure you know how to actually get involved in sickle cell disease research, if you’re interested!

So in this blog, we’ve put together a how-to guide on how to find clinical trials for you. We know some people may find the first step to actually finding a trial challenging!

The good news is, there are a few online databases that list every trial that’s recruiting in the United States. Sort of like a “Google search” but just for clinical trials.

The bad news? Well, they can be confusing to use! That’s what we’re here for. Check out our how-to guide on how to make the most of these search engines. And be sure to ask your doctor about any sickle cell disease trials in your area too.

Blog 3: Top Questions

Questions from people with sickle cell disease and their families about research and clinical trials

Welcome back! In today’s blog, we’re going to take a sneak peek into the types of questions sickle cell disease patient advocate, Mary Brown, says are the top 10 burning questions people with sickle cell disease and their families have about research and clinical trials.

Blog 2: Snapshot of Current Ongoing Sickle Cell Disease Research

In our last blog, we talked about the many different resources out there for learning about sickle cell disease research. Now, we’re breaking down what research really means in helpful everyday language and giving you a snapshot look at the kinds of things currently being researched for sickle cell disease!

Blog 1: Knowing What Useful Resources Are Out There

Welcome to the first blog on the My Sickle Cell Research Xplained website! Are you confused about what’s out there on the internet, and don’t know where to start when searching for sickle cell disease research information? Well, look no further—we’re here to help!

Whether you’re seeking more knowledge about sickle cell disease research or clinical trials, there are many resources on the internet available at your fingertips.

Also, stay tuned to our website for more content Xplaining sickle cell research in easy-to-understand everyday language! You’ll get to hear what a patient advocate has to say about sickle cell research and more. For now, join others like yourself to chat about sickle cell research in the My Sickle Cell Research Xplained Facebook group!