My Sickle Cell Research Xplained

Read Maree’s real story, as she shares her story to help you understand more about living with Type 2 Diabetes and managing the Hypos that can come along with it.

Easy to understand information about sickle cell disease research. Created by doctors and people living with sickle cell disease. Scroll to see the latest content we have created!

My Sickle Cell Research Xplained Stories

Stories based on people with sickle cell disease, their experiences and advice to others on how sickle cell research has played a role in their lives.

Blogs and Podcasts on Sickle Cell Disease Research

Check out the latest blogs and podcasts for helpful topics on sickle cell disease research.

To see all of our blogs, click here. To see all of our podcasts, click here.

Blog 8 – Basics Behind Gene Therapy

Episode 2 – Progress in SCD Research and Potential New Treatments

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We've created a private Facebook community to discuss sickle cell disease research. Join the community to stay up to date on content added to this website about sickle cell disease research!

Meet the Experts

Meet the experts who helped create the My Sickle Cell Research Xplained content. We’ve got a pretty great panel. Check out their bios to learn more!

Meet the Advocates

Meet the advocates who helped create the My Sickle Cell Research Xplained content. Check out their bios to learn more!

Medicine X Story

Working as a medical doctor, I realized that far too many people may be confused about their diagnoses, their conditions, and their treatments. There can be a disconnect between the language that health care providers use, and what many individuals understand. This can make you feel anxious at what is often a very difficult time in your life.

We believe there is a better way. We believe all people, regardless of age, gender, culture or condition, should have access to medical information they can understand! Everyone should feel informed and empowered, in order to engage with their health care providers and be involved in making medical decisions.

This is why Medicine X was created.

Signature

Dr Kim Chilman-Blair
Founder, Medicine X

About My Sickle Cell Research Xplained

Dedicated Team

The Medicine X team is made up of doctors, artists, and creative writers who work together to make sure the information provided on this website is medically correct, up-to-date, and easy to understand.

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  • Episode 1 – Part 1 of 4: Top Questions about Sickle Cell Research and Clinical Trials

    Patient advocate Mary Brown sat down and chatted with us about the top questions people with sickle cell disease and their caregivers have about clinical research. Can you guess what …

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  • Episode 1 – Part 2 of 4: Top Questions about Sickle Cell Research and Clinical Trials

    Sickle cell disease patient advocate, Mary Brown, says these are the top 10 burning questions people with sickle cell disease and their families have about research and clinical trials.

    Read more Listen now
  • Episode 1 – Part 3 of 4: Top Questions about Sickle Cell Research and Clinical Trials

    Listen to sickle cell disease patient advocate, Mary Brown, discuss some things other people with sickle cell disease and their families may be wondering about.

    Read more Listen now
  • Episode 1 – Part 4 of 4: Top Questions about Sickle Cell Research and Clinical Trials

    Sickle cell disease patient advocate, Mary Brown, answers some of these top questions that people with sickle cell disease are asking about!

    Read more Listen now