A new report from the National Academies of Sciences, Engineering, and Medicine focuses on just that! They suggest that the NIH and other agencies work with community-based organizations to educate about the importance of clinical research, and motivate people to participate in clinical trials! #change #hope #sicklecelldisease

Job well done! The Nobel Prize in Chemistry was awarded to 2 female scientists who helped discover the tool for gene editing that has been used in sickle cell disease research.

Have you seen the latest developments with a petition filed with the Food and Drug Administration (FDA) to help speed the process of approval of new drugs for sickle cell disease?! It's TRUE!

Here’s something we hear all the time: “I tried looking for a clinical trial, but I couldn’t find one.” If you need some further guidance, hear from Shirley, who gives a short 30-second summary on how you might be able to find a clinical trial

We’ve found this pamphlet from the American Society of Hematology (ASH) very helpful in getting a big picture overview of why one would participate in sickle cell clinical trials and what’s involved

Unfortunately, racial and ethnic minorities are seriously underrepresented in clinical research. If you’re asking yourself, “Why is that important?,” you may want to take a quick moment to learn about the U.S. Food and Drug Administration (FDA) campaign to promote diversity in clinical trials. Use #clinicaltrialschampion to spread awareness about the need for diversity in clinical trials!

If you remember, we shared a video of Shirley, who participated in clinical research for sickle cell disease. Well, one of the reasons Shirley wanted to be a part of clinical research was because she knew clinical trials need people who represent the type of patients who may benefit from the study treatment.